More bad news… | Team Margot

Please support our International Registration Day on Wednesday 7 October 2020

Margot was diagnosed with blood cancer on 7 October 2013, so we have made this date the “TEAM MARGOT STEM CELL AND BONE MARROW REGISTRATION DAY” – an international day designed to inform, inspire and motivate more people to join the worldwide registers as potential stem cell and bone marrow donors, in their countries.

Margot’s mixed ethnicity was the key reason why we were unable to find her “perfect match” – this is an area where your race and ethnicity is vital – which is why, in particular, we seek to encourage people of mixed heritage and those from ethnic minorities to join a register.

We value highly & give great currency to word of mouth – please talk about this & tell someone, follow us online, retweet and share what we post and create and upload your own posts & photos on social media in support.

We don’t mind how you choose to register, only that you do PLEASE REGISTER !

Give it a go & see how it makes you feel.

Thank you.

Team Margot
Together, saving lives

Endorsements

THANK YOU for endorsing our registration day:

“As co-founders of the ACLT and parents of former leukaemia patient, Daniel De-Gale. We would like to congratulate Yaser, Nadia and the team at Team Margot Foundation on the launch of its inaugural International Stem Cell and Bone Marrow Awareness day. The ACLT fully supports this lifesaving worldwide initiative where someone is able to simply register in order to be tested and on standby in the hope that one of us is able to be chosen as a “special one” to help someone in urgent need of the gift of life.”

Beverley De-Gale, OBE & Orin Lewis OBE, Founders of ACLT (African Caribbean Leukaemia Trust)

Ann O’Leary, Head of Register Development at the blood cancer charity Anthony Nolan, said: “Saving the lives of people with blood cancer is a truly global effort, as countries all over the world work together to find stem cell matches for people in need of a transplant.

“That’s why we’re so delighted that Team Margot are about to launch their first International Stem Cell and Bone Marrow Awareness Day. Margot’s legacy inspired an incredible number of people to become lifesaving stem cell donors all over the world, and we are looking forward to recruiting the next generation of lifesavers on 7th October at donor recruitment events in Margot’s name.

“Team Margot’s International Stem Cell and Bone Marrow Awareness Day will bust myths, raise awareness and bring hope to those desperately waiting to find a donor.”

Seun Adebiyi, Project Manager, Global Partnerships and Planning, American Cancer Society said: “When I was diagnosed with leukemia and lymphoma at the age of 26, I was shocked to learn that my African ancestry meant that I had less than a 17% chance of finding a compatible bone marrow donor. Thousands of patients with minority or mixed heritage search every day for a life saving donor. I was one of the lucky few who found a match, but many do not. Patients who can’t find donors are just as deserving of life as anyone else. We desperately need more donors of minority and mixed ancestry to overcome this inequity and to give patients like Margot a second chance at life.”

Theo Clarke, Lead Donor Relations Manager at NHS Blood and Transplant, said: “We really need young blood donors to sign up to the British Bone Marrow Registry (BBMR) and potentially become that one in a million match for someone in desperate need of a transplant. Joining the registry is really easy, all you have to do is tell a member of staff at the start of your next blood donation session that you want to join the registry and an extra sample of blood will be taken during your donation.

“Currently the chances of Black, Asian and Minority Ethnic (BAME) and Mixed Race patients in the UK finding a matching donor can be as low as 40%, whereas Caucasian patients have around a 90% chance of finding a donor. So NHS Blood and Transplant is looking to recruit young BAME and Mixed Race blood donors and Caucasian male blood donors between the ages of 18 and 30 on to the BBMR . The more people we have on the register, the more of a chance we have at finding a match.”

To find out where your nearest session is and to book an appointment to give blood and join the BBMR, call 0300 123 23 23 or visit www.blood.co.uk.

A message from The Caribbean Bone Marrow Registry: “You turned your pain into a passion that became a purpose and a part of a great movement. On behalf of the team, members and affiliates of the Caribbean Bone Marrow Registry, we applaud your efforts and commitment in making a difference in the lives of those suffering from these terrible diseases. Thank You. We invite all to enroll, be a match and save a life.”

www.caribbeanmarrow.org

Lisa Nugent, Head of Donor Recruitment at DKMS said: ”The success that we enjoy today in registering potential donors can be attributed to our earliest patient campaigns, the first of which was Margot’s appeal. The family’s willingness to share their story to raise awareness, not just then but on a continued basis, has inspired many to sign up. Earlier this year we were able to celebrate the registration of our 500,000th potential donor, with the knowledge that we have given more than 900 patients, a second chance of life.”

Christa Justus from Gabrielle’s Angel Foundation for Cancer Research said: “Margot Martini’s legacy is beautifully secured through the vital work of Team Margot. Gabrielle’s Angel Foundation for Cancer Research proudly supports their efforts to help other angels like Margot live long, healthy, cancer-free lives.” gabriellesangels.org

Betina Sørensen, M.D. Senior Consultant at Aarhus University Hospital, Denmark said: “We are pleased to be working with Team Margot and fully support the Team Margot Stem Cell and Bone Marrow Awareness Day. Here in Denmark we will be marking the occasion in our blood bank by putting Team Margot stickers on soft drinks, chocolate and fruits, putting up posters on the walls, handing out Team Margot bracelets and showing the video with Margot in our waiting room.”

Amy Ronneberg, CFO, National Marrow Donor Program/Be The Match® Said: “Patients in need of a life-saving marrow transplant are most likely to match a donor of their same race and ethnicity. Team Margot is meeting that need by recruiting diverse donors and people of mixed heritage. We’re proud to partner with such an outstanding organization, dedicated to saving lives.”

Matti Korhonen, Senior Medical Officer at the Finnish Stem Cell Registry said:

“The Finnish Stem Cell Registry supports the International Stem Cell and Bone Marrow Awareness Day. We hope that through this initiative many more will decide to give leukemia patients a chance for cure.”

Tarryn Corlett – Chief Executive Officer of The Sunflower Fund, South Africa said:

“It is vital that we create awareness and educate the public about Leukaemia and other life threatening blood disorders as well as the desperate need for bone marrow stem cell donors. One of the biggest challenges that we face in South Africa, is the shortage of donors from Black, Coloured and Indian ethnic backgrounds. Team Margot Stem Cell and Bone Marrow Awareness Day will assist in the endeavours to educate the public and hopefully encourage donors, from all ethnic groups, to step forward all over the world.

If you are in South Africa and would like to become a lifesaving bone marrow stem cell donor, please contact The Sunflower fund on 0800 12 10 82 or visit www.sunflowerfund.org.za”

Latest Tweets

@swab4margot
@@swab4margot

RT @NHSOrganDonor: Two dads, united by the tragic loss of a young child, discuss dealing with grief and how organ donation, blood dona… https://t.co/Buxd804XS5

13 hours ago
@swab4margot
@@swab4margot

RT @yasermartini: Happy Father’s Day 😊 @NHSOrganDonor recorded this conversation about organ donation between me & Jay, another fathe… https://t.co/rnjYz4Z2o5

20 hours ago
@swab4margot
@@swab4margot

RT @GiveBloodNHS: Blood, we've all got it. 🩸 But when it comes to the facts about blood, how much do most of us really know?… https://t.co/IVpjxw8Flb

23 hours ago
@swab4margot
@@swab4margot

RT @GiveBloodNHS: Blood donor eligibility rules have now changed. Our tool can help you check you can give before you go along to y… https://t.co/ASbrZzODMz

23 hours ago
@swab4margot
@@swab4margot

RT @CharleneWhite: Fewer than 1% of the Black community are blood donors… So I’ll be joining many others giving blood this weekend as… https://t.co/LvdSVkcDPV

23 hours ago
@swab4margot
@@swab4margot

RT @dopeblackmums: There is an urgent need for donors with Ro blood which is often used to save people with Sickle Cell disease. Ro… https://t.co/ODdpjkv8aw

23 hours ago
@swab4margot
@@swab4margot

RT @DKMS_uk: MACKENZIE NEEDS OUR HELP! This little girl is just 5 months old and is fighting for her life. She urgently needs a… https://t.co/zhIm2hB1tj

23 hours ago
@swab4margot
@@swab4margot

RT @NHSOrganDonor: "I’m very happy that I went through with the transplant to give Oliver the gift of life, he thinks I’m a real life… https://t.co/KLVAvP1ui3

4 weeks ago
@swab4margot
@@swab4margot

RT @GiveBloodNHS: We’re appealing for more Black people to register and become blood donors in Evan Nathan Smith’s memory. A series… https://t.co/EYnS1hLVxx

4 weeks ago
@swab4margot
@@swab4margot

RT @AliDawson_: Today is the first anniversary of the #MaxAndKierasLaw change. Please share your wishes with your friends and famil… https://t.co/RWSKZTCWRq

1 month ago
@swab4margot
@@swab4margot

RT @NHSOrganDonor: Today marks the first anniversary of the #OrganDonation law change in England! 💕 Families continue to be involved… https://t.co/nFqYTrzvH3

1 month ago
@swab4margot
@@swab4margot

RT @warren_fingrut: On behalf of the @MarrowDonorDay task force of World Marrow Donor Association @WMDA_office, I'm excited to share ou… https://t.co/rTn6zKbK3K

1 month ago
@swab4margot
@@swab4margot

RT @GiveBloodNHS: The eligibility rules around blood donation are changing from 14 June. We're excited to move towards a more inclus… https://t.co/1Jc5DiBFaI

1 month ago
@swab4margot
@@swab4margot

Pete McCleave @10000Donors needs a stem cell donor match & his Macanese mixed heritage is the key obstacle to findi… https://t.co/v0ReykzrvT

1 month ago
@swab4margot
@@swab4margot

RT @ReetNortherner4: As a registered donor myself, I'd definitely recommend it. It's so simple to sign up and could save someone's life. https://t.co/aVjoJVEt8b

1 month ago
@swab4margot
@@swab4margot

RT @AnthonyNolan: ‘My daughter calls me her hero. She even said she wants to join the register when she’s older.’ This week is Sabr… https://t.co/kFUfIGQSOk

1 month ago
@swab4margot
@@swab4margot

TEAM MARGOT’S IMPACT REPORT & 3 YEAR STRATEGIC PLAN - We are proud to share with you the Impact Report conducted by… https://t.co/k56MChl9wU

2 months ago
@swab4margot
@@swab4margot

RT @DKMS_uk: “I heard about the lack of people from black, Asian and minority ethnic backgrounds on the register. I hoped I woul… https://t.co/9iwCU7Frbp

2 months ago
@swab4margot
@@swab4margot

RT @GiveBloodNHS: "First Blood donation ✔️ "The NHS currently needs 400 new donors a day to keep up with demand, I really encourage… https://t.co/53dLurOLjd

2 months ago
@swab4margot
@@swab4margot

RT @NHSOrganDonor: If you're spending this #BankHolidayMonday with your family, why not have a chat about organ donation? A few word… https://t.co/AQZTabVF2b

2 months ago
@swab4margot
@@swab4margot

You are invited to attend a virtual 'lunchtime lecture': 1-2pm on Wednesday 5 May. Margot's father, @yasermartini… https://t.co/NYPIVsfXGf

2 months ago
@swab4margot
@@swab4margot

RT @AnthonyNolan: 🧵Losing someone close to you after a stem cell transplant is devastating. And bereavement is a very personal experi… https://t.co/hicQNKbwNk

2 months ago
@swab4margot
@@swab4margot

RT @AnthonyNolan: ‘You never know when someone needs you - it’s better to join the register sooner rather than later.’ Mere months a… https://t.co/bgtrNldc4j

2 months ago
@swab4margot
@@swab4margot

RT @DKMS_uk: PLEASE RT & REGISTER IF YOU CAN. EMMETT NEEDS OUR HELP! 🙏 Emmett, 4, has a rare and life-threatening blood disorde… https://t.co/0fVJNQZdwu

2 months ago
@swab4margot
@@swab4margot

RT @DKMS_uk: Did you know? 🤔 You can still donate your blood stem cells if you've had a blood transfusion during pregnancy or a… https://t.co/oDjTQ8YAfo

2 months ago