Yaser

Husband to Vicki and father to Oscar (2007), Rufus (2008), Digby (2015), Humphrey (2017) & Margot (2012-2014)

January 9, 2024

Calling for contributions from anyone involved in engaging people from minority ethnic backgrounds in stem cell / blood / tissue donation and /or biobanking

By

with Dr Jill Shepherd

Dr Jill Shepherd, at the University of Kent was one of the more than 100 people who attended the APPG inquiry report launch last month.

Jill is a Senior Lecturer in Stem Cell Biology in the School of Biosciences and her project team is leading a discussion panel  entitled ‘Public Participation and Health Equality in Future Biobanking’ as part of the 2024 quadrennial joint meeting of the European Association for the Study of Science and Technology (EASST) and the Society for Social Studies of Science (4S) 16-19 July in Amsterdam.

Jill has asked for our help with engaging people from minority ethnic backgrounds in stem cell / blood / tissue donation and /or biobanking.

To this end, she has written what follows below, which I trust clarifies the “call” (request for information) a bit for the wider community.

Thank you for supporting in any way you’re able.

Team Margot
Together, saving lives

By Dr Jill Shepherd

Professor Joy Zhang

Whilst we traditionally think of ‘biobanking’ as storage of donated tissue / cells for patient treatment,  we can also think of a donor registry as a kind of biobank. The panel would be enriched by participation from a wide range of stakeholders involved in the creation, management and use of all such biobanks. We invite conventional paper presentations, visual exhibitions or photography displays, as well as brief demonstrations of alternative creative methods that foster broader public engagement in advancing biobanks as a catalyst for health equity. Link to more information and abstract submission portal in the call below. Any questions or queries please contact Dr Jill Shepherd (j.l.shepherd@kent.ac.uk). 

Call: EASST/4S-Panel 157:  Public Participation and Health Equality in Future Biobanking
(This panel is part of the 2024 quadrennial joint meeting of the European Association for the Study of Science and Technology (EASST) and the Society for Social Studies of Science (4S), 16-19 July in Amsterdam.)

Camille-Serisier

Persistent difficulty engaging minorities in biobanking necessitates methodological innovations and a recalibration of priorities. This is essential to evoke trusting and reciprocal partnership between minority/marginalised communities and health establishments to curate a biodatase that is inclusive and equitable for future collective health.

Co-convened by sociologist, Professor Joy Zhang also from the University of Kent and Founding Director of the Centre for Global Science & Epistemic Justice. Joy is a sociologist with a first degree in medicine. She is a leading expert in the transnational governance of scientific uncertainty and the democratisation of knowledge production. Also on the panel is a natural scientist and artist, Camille Serisier who explores the power of storytelling as a force for positive social change. This combined format panel welcomes research papers, visual exhibits, and creative demonstrations for broader public involvement in advancing biobanks as a catalyst for health equity.
Details and abstract submission portal: https://nomadit.co.uk/conference/easst-4s2024/p/14203 
Deadline: 12 February 2024
Posted in: Journal