Video: Team Margot at SOHN Conference

Please support our International Registration Day on Wednesday 7 October 2020

Margot was diagnosed with blood cancer on 7 October 2013, so we have made this date the “TEAM MARGOT STEM CELL AND BONE MARROW REGISTRATION DAY” – an international day designed to inform, inspire and motivate more people to join the worldwide registers as potential stem cell and bone marrow donors, in their countries.

Margot’s mixed ethnicity was the key reason why we were unable to find her “perfect match” – this is an area where your race and ethnicity is vital – which is why, in particular, we seek to encourage people of mixed heritage and those from ethnic minorities to join a register.

We value highly & give great currency to word of mouth – please talk about this & tell someone, follow us online, retweet and share what we post and create and upload your own posts & photos on social media in support.

We don’t mind how you choose to register, only that you do PLEASE REGISTER !

Give it a go & see how it makes you feel.

Thank you.

Team Margot
Together, saving lives

Endorsements

THANK YOU for endorsing our registration day:

“As co-founders of the ACLT and parents of former leukaemia patient, Daniel De-Gale. We would like to congratulate Yaser, Nadia and the team at Team Margot Foundation on the launch of its inaugural International Stem Cell and Bone Marrow Awareness day. The ACLT fully supports this lifesaving worldwide initiative where someone is able to simply register in order to be tested and on standby in the hope that one of us is able to be chosen as a “special one” to help someone in urgent need of the gift of life.”

Beverley De-Gale, OBE & Orin Lewis OBE, Founders of ACLT (African Caribbean Leukaemia Trust)

Ann O’Leary, Head of Register Development at the blood cancer charity Anthony Nolan, said: “Saving the lives of people with blood cancer is a truly global effort, as countries all over the world work together to find stem cell matches for people in need of a transplant.

“That’s why we’re so delighted that Team Margot are about to launch their first International Stem Cell and Bone Marrow Awareness Day. Margot’s legacy inspired an incredible number of people to become lifesaving stem cell donors all over the world, and we are looking forward to recruiting the next generation of lifesavers on 7th October at donor recruitment events in Margot’s name.

“Team Margot’s International Stem Cell and Bone Marrow Awareness Day will bust myths, raise awareness and bring hope to those desperately waiting to find a donor.”

Seun Adebiyi, Project Manager, Global Partnerships and Planning, American Cancer Society said: “When I was diagnosed with leukemia and lymphoma at the age of 26, I was shocked to learn that my African ancestry meant that I had less than a 17% chance of finding a compatible bone marrow donor. Thousands of patients with minority or mixed heritage search every day for a life saving donor. I was one of the lucky few who found a match, but many do not. Patients who can’t find donors are just as deserving of life as anyone else. We desperately need more donors of minority and mixed ancestry to overcome this inequity and to give patients like Margot a second chance at life.”

Theo Clarke, Lead Donor Relations Manager at NHS Blood and Transplant, said: “We really need young blood donors to sign up to the British Bone Marrow Registry (BBMR) and potentially become that one in a million match for someone in desperate need of a transplant. Joining the registry is really easy, all you have to do is tell a member of staff at the start of your next blood donation session that you want to join the registry and an extra sample of blood will be taken during your donation.

“Currently the chances of Black, Asian and Minority Ethnic (BAME) and Mixed Race patients in the UK finding a matching donor can be as low as 40%, whereas Caucasian patients have around a 90% chance of finding a donor. So NHS Blood and Transplant is looking to recruit young BAME and Mixed Race blood donors and Caucasian male blood donors between the ages of 18 and 30 on to the BBMR . The more people we have on the register, the more of a chance we have at finding a match.”

To find out where your nearest session is and to book an appointment to give blood and join the BBMR, call 0300 123 23 23 or visit www.blood.co.uk.

A message from The Caribbean Bone Marrow Registry: “You turned your pain into a passion that became a purpose and a part of a great movement. On behalf of the team, members and affiliates of the Caribbean Bone Marrow Registry, we applaud your efforts and commitment in making a difference in the lives of those suffering from these terrible diseases. Thank You. We invite all to enroll, be a match and save a life.”

www.caribbeanmarrow.org

Lisa Nugent, Head of Donor Recruitment at DKMS said: ”The success that we enjoy today in registering potential donors can be attributed to our earliest patient campaigns, the first of which was Margot’s appeal. The family’s willingness to share their story to raise awareness, not just then but on a continued basis, has inspired many to sign up. Earlier this year we were able to celebrate the registration of our 500,000th potential donor, with the knowledge that we have given more than 900 patients, a second chance of life.”

Christa Justus from Gabrielle’s Angel Foundation for Cancer Research said: “Margot Martini’s legacy is beautifully secured through the vital work of Team Margot. Gabrielle’s Angel Foundation for Cancer Research proudly supports their efforts to help other angels like Margot live long, healthy, cancer-free lives.” gabriellesangels.org

Betina Sørensen, M.D. Senior Consultant at Aarhus University Hospital, Denmark said: “We are pleased to be working with Team Margot and fully support the Team Margot Stem Cell and Bone Marrow Awareness Day. Here in Denmark we will be marking the occasion in our blood bank by putting Team Margot stickers on soft drinks, chocolate and fruits, putting up posters on the walls, handing out Team Margot bracelets and showing the video with Margot in our waiting room.”

Amy Ronneberg, CFO, National Marrow Donor Program/Be The Match® Said: “Patients in need of a life-saving marrow transplant are most likely to match a donor of their same race and ethnicity. Team Margot is meeting that need by recruiting diverse donors and people of mixed heritage. We’re proud to partner with such an outstanding organization, dedicated to saving lives.”

Matti Korhonen, Senior Medical Officer at the Finnish Stem Cell Registry said:

“The Finnish Stem Cell Registry supports the International Stem Cell and Bone Marrow Awareness Day. We hope that through this initiative many more will decide to give leukemia patients a chance for cure.”

Tarryn Corlett – Chief Executive Officer of The Sunflower Fund, South Africa said:

“It is vital that we create awareness and educate the public about Leukaemia and other life threatening blood disorders as well as the desperate need for bone marrow stem cell donors. One of the biggest challenges that we face in South Africa, is the shortage of donors from Black, Coloured and Indian ethnic backgrounds. Team Margot Stem Cell and Bone Marrow Awareness Day will assist in the endeavours to educate the public and hopefully encourage donors, from all ethnic groups, to step forward all over the world.

If you are in South Africa and would like to become a lifesaving bone marrow stem cell donor, please contact The Sunflower fund on 0800 12 10 82 or visit www.sunflowerfund.org.za”

Latest Tweets

@swab4margot
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RT @HeyJayde_: @GiveBloodNHS I’m raising awareness for blood and stem cell donation and I’d love if you could share this? 😊 https://t.co/F3iHq7pryq

4 days ago
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RT @DKMS_uk: Did you know that only 50-60% of people who request a swab kit actually return them? 😲 That means there are thousa… https://t.co/lLS9ecOfcU

4 days ago
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.@LondonKarateUK supports Team Margot 💪 Margot’s brother, Rufus started learning Karate aged 4 & today (12) remain… https://t.co/APne5mFAqA

1 week ago
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RT @hardikpshah25: Another Day Another opportunity to become a stem cell donor https://t.co/UErAudXqFx @helpveernow @DKMS_uk @DKMS_us… https://t.co/4Mjppj3RoF

2 weeks ago
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RT @yasermartini: @elonmusk AGREE, so stick to registered charities. @swab4margot inspires, motivates & educates people, including ch… https://t.co/snP6iuOBpB

2 weeks ago
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RT @NHSOrganDonor: Did you know? Only around 1 in 100 people die in circumstances where they are able to donate their organs so every… https://t.co/mIhqu4ksGa

2 weeks ago
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RT @yasermartini: @andrewboggs @GiveBloodNHS Blood & platelet donors never get to meet the recipients of their donations & similarly,… https://t.co/0IloTtP0Au

2 weeks ago
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The power of hope is incredible: https://t.co/pzo5dtuPej Happy New Year 🥳 https://t.co/5AgjQLvOvC

3 weeks ago
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RT @acltcharity: NHS: You can still give blood under Tier 3 restrictions https://t.co/R0SGoOUesk via @wiltsgazette #blooddonation https://t.co/MuvsFZl4Le

3 weeks ago
@swab4margot
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RT @dderbydave: 83rd @GiveBloodNHS donation today. Usually made into eye serum to help someone see. Late Xmas present for someone.… https://t.co/zOkWXq163r

3 weeks ago
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RT @CWharton23: A very moving story, if you don't already please give blood donation a try. You never know if/when you or your fri… https://t.co/Go2GhiPUrx

4 weeks ago
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Thanks to @TNLComFund @Swab4Margot has the 💷 to better understand how best to continue to inform, inspire & motivat… https://t.co/r0PapjbFB8

1 month ago
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RT @yasermartini: I first saw this poster years ago when I visited @OrinLewisOBE & @BeverleyDeGale @acltcharity for the first time. I… https://t.co/Q4AeAs98E1

1 month ago
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Brilliant. So well deserved. Many congratulations to everyone @Parkdeanresorts on winning these awards & THANK YOU… https://t.co/zGyO8DYahR

1 month ago
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DIOLCH i bawb sydd wedi bod yn wirfoddolwr Tîm Margot ac i'n holl gefnogwyr sy'n rhoi rhoddion 🙌… https://t.co/4j0K1JsAFK

2 months ago
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GRAZIE a tutti coloro che sono stati volontari del Team Margot ea tutti i nostri sostenitori pro-donatori 🙌… https://t.co/BSsrvCiNG4

2 months ago
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Tak til alle, der har været en Team Margot frivillig & til alle vores pro-donorsupportere 🙌… https://t.co/JwoLzp5BOe

2 months ago
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謝謝所有瑪戈特團隊的志願者以及我們所有的捐助者支持者 🙌 #InternationalVolunteerDay #teammargot #togethersavinglives 🙏

2 months ago
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DANKE an alle, die sich freiwillig für das Team Margot gemeldet haben, und an alle unsere Unterstützer, die sich fü… https://t.co/o70UcaI5fd

2 months ago
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MERCI à tous ceux qui ont été bénévoles de la Team Margot et à tous nos supporters pro-donateurs 🙌… https://t.co/wjWTnKwooV

2 months ago
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GRACIAS a todos los que han sido voluntarios del Equipo Margot y a todos nuestros partidarios de donantes 🙌… https://t.co/agke7fGsIH

2 months ago
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DZIĘKUJEMY wszystkim, którzy byli wolontariuszami Zespołu Margot i wszystkim naszym wspierającym darczyńców 🙌… https://t.co/gf6N88KRCd

2 months ago
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THANK YOU to everyone who has been a Team Margot volunteer & to all our pro-donor supporters 🙌… https://t.co/OeLp2mJPwg

2 months ago
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RT @TimesRadio: "Going on this register is like buying a lottery ticket and someone else wins." Comedian Al Murray is campaigning… https://t.co/3jINd0bWIu

2 months ago
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RT @yasermartini: @andymitchell73 @AnthonyNolan Here’s the letter we sent to Margot’s donor: https://t.co/ElEMJ1lHvT We might just… https://t.co/2f2D9hWhAV

2 months ago