Team Margot

We urgently need more people to register as potential stem cell / bone marrow donors.

Over 37,000 people worldwide need a bone marrow transplant but they must first find a matching donor.

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June 26, 2019

Episode 6 – Peter McCleave needs a stem cell donor to save his life…

By Yaser

Posted in: Journal

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Previous Blog Posts

Episode 6 – Peter McCleave needs a stem cell donor to save his life…
#MyBloodStory by Margot’s father, Yaser
Post your own #MyBloodStory for National Blood Week
Another massive thank you to Old Vicarage School
It’s World Blood Cancer Day & 500 pubs and bars are making their mark by supporting ‘Pinkspiration Week’
Episode 5 – Jackie Doyle-Price MP, Minister for Health and Social Care
We did it ! Celtic Challenge 2019 ✅
It’s now or never
What’s it like to actually donate ?
Guest blog: Is your heritage more mixed than you think?
Episode 4 – Martin & Yaser meet stem cell donor & puppeteer, Alex Heaton (a.k.a. Chewbacca)
Yiannimize – Part 1: Our Tour Car
More bad news…
Time for a rethink…
Royal Assent given to new Opt-Out Organ Donation Law
Hospitality Industry set to support ‘Pinkspiration Week’ in July, as part of Team Margot Atlantic Rowers #WeRowYouRegister campaign
’Giving to help others’ launches new primary school resources
Episode 3 – Our boat is wrapped !
Episode 2 – We deliver our boat to Yiannimize
We Row. You Register.
Episode 1 – The (first) Wrap Job
Guest blog by Anne Knobloch: “Children helping Children”
Thank you Old Vicarage School !
Team Margot works for compulsory Health Education to include stem cell & bone marrow donation
Guest blog by John Barnes, peripheral stem cell donor
The power of hope is incredible
Guest blog by Michelle Grail, peripheral stem cell donor
Team Margot’s Stem Cell and Bone Marrow Registration Day 2018
THANK YOU DONOR !
Let’s get talking about organ donation
Happy 6th birthday, Margot. We miss you. x
The Culture and Philosophy of ‘Giving to help others’
Live Your Life 2018
Mixed emotions
“Because it’s the right thing to do”
‘Giving to help others’ education programme begins roll out
World Blood Cancer Day
Do good, feel good
We can all become philanthropists
National Education Union spotlights Team Margot’s ‘Giving to help others’ education programme
Donor & Patient meeting
Team Margot Foundation – Review of Year Three (2017/18)
An afternoon at Westminster: autologous stem cell transplant trials and The ‘Hidden’ Cancer report
‘Finding the Perfect Match’ by Stephanie Gabbatt
NOW is the time to share your views on a new organ donation system.
Supporting Team Margot: Mayfield School, Dagenham
Another Team Margot donor shares their experience
Team Margot & NHS Blood and Transplant launch new primary school education programme: ‘Giving to help others’
We all miss you, Margot x
Photography exhibition ‘The Power of One’ comes to City Hall
Team Margot Stem Cell & Bone Marrow Registration Day 2017
Engaging in the organ donation debate on radio today
“Shifting the balance of presumption in favour of organ donation”
Team Margot Foundation has been nominated as ‘Best Charity’ in The Sun’s inaugural ‘WHO CARES WINS’ Health Awards
Don’t forget those who are mixed race, like you.
It’s good to talk.
Margot’s story touches on the three main types of donation…
when Vicki raised the question of donating Margot’s organs
If you’d be prepared to take…
Don’t do what I didn’t…
URGENT – BRITISH SRI LANKANS: YOUR IMMEDIATE HELP PLEASE, TO SAVE A LIFE
Happy 5th birthday, Margot x
On average, there’s a donation every week from someone who registered because of Margot…
#LiveYourLife17 Photo competition
“Should non-donors be given an organ ?”
You’re invited…
“… provided I’m fit and healthy.”
Yeovilton International Air Day
Hopefully, my day won’t be completely wasted… Here’s how you can help
National Blood Week
Happy Father’s Day ! x
The Celtic Challenge 2017
Thank you, Margot x
Weather permitting… we leave TOMORROW!
Guest blog on Cord Blood
A dreadful co-incidence or just another awful stat of life ?
Sea Rowing Practise
Team Margot Ambassador, Harley Bird on being the voice of Peppa Pig
Unfortunately, not everyone is like you.
Team Margot Foundation – Review of Year Two (2016/17)
Because of Margot
A moment of reflection
”Through the action of young Londoner’s comes real change”
Your race and ethnicity is vital, when it comes to giving blood
Mental May-hem ? Do something positive & feel better
Thank you & Happy New Year !
We wish you a Merry Christmas…
You can save a life – directly, or indirectly (or both)
Here’s one quick & easy way you can help
Thank you for your continued support
Mitzvah Day is a Jewish led day of social action…
Our dear little daughter, Margot passed away at home, two years ago today…
What would inspire you register as a potential donor ?
Early indications show spike in number of new potential donors
Team Margot Stem Cell and Bone Marrow Registration Day 2016
Mumsnet & a special invitation to join us on Friday
You’re unique.
You might be the only one who can save a life.
17 September is World Marrow Donor Day: THANK YOU to Donors EVERYWHERE !
Margot’s Dr explains why we need unrelated donors & the huge difference they have made
Team Margot at The Great River Race 2016
Back in training for The Celtic Challenge
Guest Blog: Team Margot Denmark
Team Margot at the NYSE
Guest Blog: Birthdays are a gift, not a right
#missingtype
Happy 4th birthday Margot
Team Margot is good for your mental health and well being
Living life well: Vesta Magazine
Live Your Life Day – Friday 29 July
Could you be someone’s Golden Ticket?
“Racial Justice”
Team Margot Ten Miler: Sunday 2 October 2016
Thank you Tower House School !
Completing unfinished business: Team Margot at Transpyr 2016 (again)
Happy Father’s Day ! x
Thank you for sharing x
Team Margot Foundation continues to help fund leukaemia Research
NHSBT Donor Recognition Ceremony & World Blood Cancer Day
Team Margot Parliamentary Reception
Lifetime Achievement Award
A chance encounter & a meeting of minds
Wednesbury Athletic FC draw against Walsall Legends & retain The Margot Martini Cup 2016
Team Margot Rowers & Arklow Ladies Win the Celtic Challenge 2016 Time Trial in Aberystwyth
The Celtic Challenge 2016 has been CANCELLED
Team Margot’s Medical Courier activity at KidZania London
THANK YOU for your ongoing support for Team Margot Foundation
Day trip to Lymington for sea rowing practise
Cyprus, Morocco & South West London
#MATCH4TOMMY – Appeal for more mixed race donors as firefighter’s son battles Leukaemia
Grab a pen and paper… (ASAP please!)
An anonymous patient to donor letter
Delivering the UK Stem Cell Strategy: Improving equity of access for Black, Asian and minority ethnic patients
Does ethnicity priming impact on a person’s propensity to give blood?
The Garden Bridge
Blood donation earlier today – a family affair
Team Margot Foundation – An overview of our first year
‘I was there’
Do it for love
Video blog: Katrina – one year post bone marrow donation
How you can help in the fight against blood cancer, on World Cancer Day
Getting ready for The Celtic Challenge 2016
Brussels, MEP’s & The World’s Biggest Pub Quiz
More Parliamentary questions
It’s rare to be a platelet donor, but the need for platelets isn’t rare
Earlier today on LBC radio…
Team Margot call to action: if you’re mixed race, we urgently need your help – you could be a match for Lara & others like her
The best way you can help yourself, is to help others.
Update: 98 people potentially matched with a patient in need
Don’t just give up. Give
Don’t do it… unless you’re sure you want to.
Merry Christmas & best wishes for 2016 !
Spare yourself the shame
You can save a life & it could be Hazel’s …
Is that the beer talking ..?
“I believe that children are our future…”
#GivingTuesday
Team Margot’s first Parliamentary question to the Secretary of State for Health
Did you know …
Special Award for Outstanding Contribution
A Virtual Register for the Rest of the World
If you haven’t already, please do something amazing…
Thank you to blood donors everywhere
At Excel, London earlier this week…
“What’s worse than having leukaemia ?”
“Giving to help others”
Some highlights from last week
Guest Blog by Judy Leden MBE (peripheral stem cell donor)
Thank you and Congratulations !
It’s almost 2 years since Margot was diagnosed with blood cancer
When Margot’s white cell count was low and the % of donor cells present in her blood was rising…
Guest blog: Team Margot were “OARsome” at The Great River Race
#25MillionThanks
#BleedForEngland
Please download, print & display
Have a chat about Margot & see how that makes you feel
Volunteers needed on 2 October in Brighton
Bloodwise, Childhood Cancer Awareness & World Marrow Donor Day
Our first donor registration event in Poland
Wishing everyone a good first day back at school !
Team Margot completes The Rolex Fastnet Race 2015
Katrina, Team Margot Donor receives an update on her recipient!
If you’re at the Notting Hill Carnival this weekend…
When I first met you, Blue Kangaroo!
Celebrate the good times !
Organ & Tissue Donation
Save yourself money & help to save a life.
When Margot wore her first tutu…
Thank you x
Thank you for supporting in the fight against blood cancer
Experimental treatment & the big question
Guest blog from Sam Sarsfield
Doing what’s best for Margot & our chat with the boys
An impossible decision – 21 July 2014
Town to Coast Charity Ride
Margot was mixed race and so is Elsie
Dealing with bad news
Team Margot’s fourth donor (thus far !)
Unknown unknowns
The Free Help Guy – a modern day superhero
Don’t assume they already know…
Live Your Life Day 2015 – Supporting Team Margot
Thank you Alastair Campbell
Guest blog: UR the Cure – Awareness, Education, More life-saving matches
Team Margot heads for the Pyrenees
The Margot Room
A meeting of minds
HLA-identical sibling donors
Together, saving lives
Happy Father’s Day x
“Beyond this, anything we try with a curative approach is essentially experimental”
It’s complicated, which is why Team Margot is a ‘signpost’
Hanging on to hope
Recognition Ceremony for Blood Donors
Relapse & fighting fear
Clapham Swab for Team Margot “has relit my faith in humanity”
Live Your Life
The Margot Martini Cup
How are you coping ?
Give a click on World Blood Cancer Day 2015
Thank you for your support & generosity
Our ‘Just One More’ campaign is one year old today
GP surgeries, dentist waiting rooms, reception areas…
Margot’s brothers, Oscar & Rufus speak out
“Charity begins at home”
Memory Day
“I wouldn’t have done this if it wasn’t for Margot’s campaign”
Vulnerability created Team Margot
Support from Mr Selfridge
Nor do you know me
Another thoughtful partnership…
Guest blog from Selina Mills
Mother’s instinct
Thanksgiving & Remembrance
I love you, Blue Kangaroo!
Thank you, Team Margot !
The ‘What if ?’ Scenario
Vicki wins Inspirational Mother Award
La Tasca raises £1,000 for Team Margot Foundation
“Margot thank you for making me smile with that gorgeous smile…”
“Your Average Bone Marrow Donor”: Michael Silverstein
How do you thank someone who has saved your life ?
KKD5: So who’s in charge?
KKD: “I don’t understand why more people aren’t registered.”
Rufus: “Easter 2014 was the best so far…”
On the day Margot was supposed to come home…
Campus Ambassador Application:Laura Pacheco
Patient confidence & psychology
Coast2Coast gear up on BBC Radio Shropshire
KKD4: Medical scrutiny
Meanwhile, across the pond …
This time last year: “Margot is 99% disease free”
Would you stake your life on a 50/50 bet ?
KKD3: Needles !
Jeremy Clarkson could do us all a favour…
KKD2: Being matched.
Lots of love on Mother’s Day
KKD1: The DIY swab kit
Team Margot is now a charity
New Team Margot Record
Team Margot Partners with Gift of Life in America
The generation of mixed cultures and genes
Katrina donates her bone marrow
Team Margot 2015 video
Margot’s bone marrow transplant video
Anxiety prior to Margot’s bone marrow transplant
Another day of calm, then the nastiness began…
Finding a matching donor is just the end of the beginning…
Pre-BMT conditioning
‘Coast 2 Coast’ cycle event inspired by Margot
The cure for blood cancer is YOU.
SAM (Sharing America’s Marrow)
“If you’d be prepared to take…”
Meanwhile, ‘Mega Beats’ in North London…
Plymouth Swab for Team Margot
Individual Social Responsibility
In advance of our Plymouth event…
Expedition Margot : putting the kit through it’s paces…
Taunton Swab for Team Margot increases the number of potential stem cell donors in Somerset by 45%
Last year’s GOSH fundraise goes towards ‘elegant’ research project
Joining the stem cell register is a “gateway” to other giving
Margot’s story resonates with children in primary schools
Hundreds register on a day of firsts…
Local businesses support Blood Cancer Awareness Week
Team Margot Blood Cancer Awareness Week
The Margot Bow
Singing Hands – we salute you!
Whilst we weren’t looking …
A cause for celebration
Start the year by saving a life…
Team Margot ‘How to’ Guide & Pack
BBC Radio 5 Live interview
Initial target: 4% of the UK population on the stem cell registry
Donor meets recipient…
“Your worst enemy cannot hurt you as much as your own unguided thoughts.” Buddha
There’s a first time for everything
THANK YOU & Merry Christmas !
On my last birthday…
A trip to BBC Broadcasting House
At Mayor’s Question Time today…
Our introduction to BMT
Tissue typing: a dark art
Our “emotional & sanity insurance policy”
‘Tis the season to be…
Video: Team Margot at SOHN Conference
Did you know, that if you’re a blood donor…
“It won’t ever happen to me …”
When you wish upon a star
Phyzzpod in honour of Margot
To live in hope
‘Everyday heroes’ can be just like you and me.
Team Margot addresses The Sohn London Conference
A surprise at the cinema
We miss you Margot. x
“Don’t cry because it’s over, smile because it happened.”
Thank you for all your love and support.
An hour at at time.
The spirit is willing …
Birdy picked my nose
Stroll around the house
Margot is our inspiration
Pseudomonas is overwhelming Margot
Welcome back.
Portacath
Steady as she goes
Not a good day after all
It isn’t negative !
Home care
Cautious Surprise & Delight

Please support our International Registration Day on Monday 7 October 2019

Margot was diagnosed with blood cancer on 7 October 2013, so we have made this date the “TEAM MARGOT STEM CELL AND BONE MARROW REGISTRATION DAY” – an international day designed to inform, inspire and motivate more people to join the worldwide registers as potential stem cell and bone marrow donors, in their countries.

Margot’s mixed ethnicity was the key reason why we were unable to find her “perfect match” – this is an area where your race and ethnicity is vital – which is why, in particular, we seek to encourage people of mixed heritage and those from ethnic minorities to join a register.

We value highly & give great currency to word of mouth – please talk about this & tell someone, follow us online, retweet and share what we post and create and upload your own posts & photos on social media in support.

We don’t mind how you choose to register, only that you do PLEASE REGISTER !

Give it a go & see how it makes you feel.

Thank you.

Team Margot
Together, saving lives

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Endorsements

THANK YOU for endorsing our awareness day:

“As co-founders of the ACLT and parents of former leukaemia patient, Daniel De-Gale. We would like to congratulate Yaser, Nadia and the team at Team Margot Foundation on the launch of its inaugural International Stem Cell and Bone Marrow Awareness day. The ACLT fully supports this lifesaving worldwide initiative where someone is able to simply register in order to be tested and on standby in the hope that one of us is able to be chosen as a “special one” to help someone in urgent need of the gift of life.”

Beverley De-Gale, OBE & Orin Lewis OBE, Founders of ACLT (African Caribbean Leukaemia Trust)

Ann O’Leary, Head of Register Development at the blood cancer charity Anthony Nolan, said: “Saving the lives of people with blood cancer is a truly global effort, as countries all over the world work together to find stem cell matches for people in need of a transplant.

“That’s why we’re so delighted that Team Margot are about to launch their first International Stem Cell and Bone Marrow Awareness Day. Margot’s legacy inspired an incredible number of people to become lifesaving stem cell donors all over the world, and we are looking forward to recruiting the next generation of lifesavers on 7th October at donor recruitment events in Margot’s name.

“Team Margot’s International Stem Cell and Bone Marrow Awareness Day will bust myths, raise awareness and bring hope to those desperately waiting to find a donor.”

Seun Adebiyi, Project Manager, Global Partnerships and Planning, American Cancer Society said: “When I was diagnosed with leukemia and lymphoma at the age of 26, I was shocked to learn that my African ancestry meant that I had less than a 17% chance of finding a compatible bone marrow donor. Thousands of patients with minority or mixed heritage search every day for a life saving donor. I was one of the lucky few who found a match, but many do not. Patients who can’t find donors are just as deserving of life as anyone else. We desperately need more donors of minority and mixed ancestry to overcome this inequity and to give patients like Margot a second chance at life.”

Theo Clarke, Lead Donor Relations Manager at NHS Blood and Transplant, said: “We really need young blood donors to sign up to the British Bone Marrow Registry (BBMR) and potentially become that one in a million match for someone in desperate need of a transplant. Joining the registry is really easy, all you have to do is tell a member of staff at the start of your next blood donation session that you want to join the registry and an extra sample of blood will be taken during your donation.

“Currently the chances of Black, Asian and Minority Ethnic (BAME) and Mixed Race patients in the UK finding a matching donor can be as low as 40%, whereas Caucasian patients have around a 90% chance of finding a donor. So NHS Blood and Transplant is looking to recruit young BAME and Mixed Race blood donors and Caucasian male blood donors between the ages of 18 and 30 on to the BBMR . The more people we have on the register, the more of a chance we have at finding a match.”

To find out where your nearest session is and to book an appointment to give blood and join the BBMR, call 0300 123 23 23 or visit www.blood.co.uk.

A message from The Caribbean Bone Marrow Registry: “You turned your pain into a passion that became a purpose and a part of a great movement. On behalf of the team, members and affiliates of the Caribbean Bone Marrow Registry, we applaud your efforts and commitment in making a difference in the lives of those suffering from these terrible diseases. Thank You. We invite all to enroll, be a match and save a life.”

www.caribbeanmarrow.org

Peter Mas-Mollinedo, CEO of Delete Blood Cancer UK said: “In 2015 we have celebrated the 100^th donor within Delete Blood Cancer UK. This marks a wonderful milestone in the organisation’s development. We would not have achieved so much so quickly without Margot’s appeal, so it is fitting tribute to all involved. We will continue to try and grow the registry so that everyone who needs a blood stem cell transplant will receive one. It really is very simple to register and it is such a heroic deed to become a donor, so why wouldn’t you just swab and register. Take 5 minutes of your life to help save someone’s life.”

Christa Justus from Gabrielle’s Angel Foundation for Cancer Research said: “Margot Martini’s legacy is beautifully secured through the vital work of Team Margot. Gabrielle’s Angel Foundation for Cancer Research proudly supports their efforts to help other angels like Margot live long, healthy, cancer-free lives.” gabriellesangels.org

Betina Sørensen, M.D. Senior Consultant at Aarhus University Hospital, Denmark said: “We are pleased to be working with Team Margot and fully support the Team Margot Stem Cell and Bone Marrow Awareness Day. Here in Denmark we will be marking the occasion in our blood bank by putting Team Margot stickers on soft drinks, chocolate and fruits, putting up posters on the walls, handing out Team Margot bracelets and showing the video with Margot in our waiting room.”

Amy Ronneberg, CFO, National Marrow Donor Program/Be The Match® Said: “Patients in need of a life-saving marrow transplant are most likely to match a donor of their same race and ethnicity. Team Margot is meeting that need by recruiting diverse donors and people of mixed heritage. We’re proud to partner with such an outstanding organization, dedicated to saving lives.”

Matti Korhonen, Senior Medical Officer at the Finnish Stem Cell Registry said:

“The Finnish Stem Cell Registry supports the International Stem Cell and Bone Marrow Awareness Day. We hope that through this initiative many more will decide to give leukemia patients a chance for cure.”

Tarryn Corlett – Chief Executive Officer of The Sunflower Fund, South Africa said:

“It is vital that we create awareness and educate the public about Leukaemia and other life threatening blood disorders as well as the desperate need for bone marrow stem cell donors. One of the biggest challenges that we face in South Africa, is the shortage of donors from Black, Coloured and Indian ethnic backgrounds. Team Margot Stem Cell and Bone Marrow Awareness Day will assist in the endeavours to educate the public and hopefully encourage donors, from all ethnic groups, to step forward all over the world.

If you are in South Africa and would like to become a lifesaving bone marrow stem cell donor, please contact The Sunflower fund on 0800 12 10 82 or visit www.sunflowerfund.org.za”

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